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Painters turn out in Baby Easton Friedel's hometown to support epidermolysis bullosa research

Painters turn out in Baby Easton Friedel's hometown to support epidermolysis bullosa research

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WEEDSPORT | An afternoon of socialization and painting on canvas brought people together Sunday to raise  funds for research on a rare, incurable skin disorder.

Paint against EB was a fundraising event hosted by A Little Valentine Design, A Sip and Paint Traveling Studio, at the First Baptist Church on Liberty Street in Weedsport. The event was inspired by the story of Easton Friedel, a 2-year-old Weedsport boy who has battled EB since birth and raised substantial awareness about the condition in the process.

A Little Valentine Design is a new traveling art studio business based in Weedsport owned by Valerie Piascik.

“I have been in business since October,” she said Sunday, “and this is my first fundraiser. I have a son about the same age as Baby Easton and I have always felt close to the family. I don’t know them personally but I wanted to do what I could to help.”

When Piascik spoke with the Friedels and offered to hold the fundraiser to help them with medical expenses, they asked her instead to donate the proceeds to the Dystrophic Epidermolysis Bullosa Research Association of America (DEBRA).

“We chose butterflies for the theme of the paintings because it is said that EB children have skin as fair and fragile as a butterflies wings," Piascik said.

The butterfly is a commonly used symbol associated with EB, a very rare genetic connective tissue disorder that causes the skin to be extremely fragile. Only one in every 20,000 births is affected and there is no cure.

For her business, Piascik travels to the customer and supplies all paints, canvases and instruction on painting She holds a bachelor’s degree in art with a concentration on painting from Wells College. She has worked in the sales field until starting the business in October. She said she hopes to bring the love of painting to those around her.


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